Using safety or ‘anti-suffocation’ pillows, which have holes in them for ventilation means that if you are face down on the pillow during a seizure, you may be able to breathe more easily. PDF/X-1:2001 SUDEP_knowledgeispower_8.5x11_v4.indd If your seizures are controlled by treatment, your safety may not be affected. I hope that we will be able to make a life changing impact by furthering our knowledge of the physiological mechanisms of SUDEP and finding ways to prevent it.” The heart plays a role in SUDEP Kalume has focused his research on one of the most severe forms of epilepsy; one that has a higher incidence of sudden death called Dravet syndrome (DS). Chesham Lane Chalfont St Peter Buckinghamshire SL9 ORJ, London Office default application/pdf Sometimes a person with epilepsy dies during or following a seizure for no obvious reason. Most, but not all, cases of SUDEP occur during or immediately after a seizure. 2019-04-15T20:27:26-04:00 What is known about the mechanisms underlying SUDEP? What should I do if my child forgets to take his or her anti-epileptic drug (AED)? This means that SUDEP is when someone is believed to have died during or after a seizure where no other cause of death can be found. Other possible steps you can take to reduce your child’s risk of SUDEP may include: When you decide to talk to your child’s health care provider about SUDEP, you may want to ask: Visit the Epilepsy Foundation’s SUDEPExternal page for more information and resources. PDF/X-1:2001 If you are concerned about SUDEP, for yourself or for someone else, talk to your neurologist about what any risks mean for you and your situation and how to lower the risk of SUDEP. SUDEP in children. Understanding the complexities of the brain is key to understanding the causes of epilepsy and the impact of seizures on the brain. For others, ongoing seizures mean that epilepsy has a long-term impact on them and their ability to have a ‘normal life’. We use cookies to optimise our website and ensure you get the best possible experience during your visit. The exact cause is not known, but these are possible factors:1-4. There may be changes to your treatment that would help to reduce the number of seizures you have. If you are still having seizures, having a review of your epilepsy and treatment with a neurologist or epilepsy nurse might be helpful. As SUDEP is thought to happen during or following a seizure, uncontrolled or poorly controlled seizures are a risk. 206186, Brexit contingency plans for epilepsy medication, SUDEP is a research priority for Epilepsy Society. Our Helpline is open five days a week, Monday to Friday 9am to 4pm, (Wednesday 9am to 7.30pm). What medicines provide the best seizure control for my child? The reasons for SUDEP are not clearly understood. H��W[o��}��G����_ ���� Epilepsy can cause a number of health complications, especially if it goes untreated. xmp.did:f076ea58-f43f-4cc5-b6c5-7d4ebec1df24 Watching a child deal with the day-to-day challenge of epilepsy can be hard for any parent. CDC is not responsible for Section 508 compliance (accessibility) on other federal or private website. Order this leaflet from our online shop as part of our 'first five free' offer, or download the pdf using the link below. CAN Mezzanine 49-51 East Road, London, N1 6AH. Saving Lives, Protecting People, Steps you can take to reduce the risk of SUDEP for your child. SUDEP can be a difficult subject to talk about. You can search for epilepsy specialists using the links listed under Frequently Asked Questions. PDF/X-1a:2001 Devinsky O. Some people with epilepsy find it helpful to consider safety aids or equipment that might help them with day-to-day life. If medications don't … Knowing a little about SUDEP and the risks around having seizures might help you to work out what risks apply to you, and how to reduce them so you can feel more in control. Some safety issues may not be relevant to you or you may have your own ideas about what would make situations safer for you. For example, an alarm, or monitor, that can alert family or friends when someone has a seizure. This includes driving, sleep, work and travel. You may opt-out of our marketing communications by clicking the ‘unsubscribe’ link at the end of our marketing emails or through our unsubscribe number 01494 601 300. Whether you want to receive email updates about epilepsy, enter your email address: Centers for Disease control Prevention. Epilepsy specialist, if you continue to have a ‘ normal life ’ are not caused by injury drowning! Uncontrolled epilepsy or frequent seizures are controlled by treatment, your safety may be changes to treatment. 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